Comments for IDF SCID Newborn Screening

Comment on SCID Newborn Screening in the Land of 10,000 Lakes! by Newborn Screening Pilot Programs « SCID, Angels for Life

Newborn Screening Pilot Programs « SCID, Angels for Life — Sun, 06 May 2012 15:52:21 +0000

[...] Tuesday, October 5, 2010 the Minnesota Newborn Screening Advisory Committee met and voted unanimously to add SCID to the states newborn screening panel. The next step is to have the Commissioner sign off on SCID screening and then get legislature to grant permission to increase the fee for screening. Who wouldn’t approve a small increase if it means saving a babies life? Testimony from an IDF representative. [...]

Comment on NEW! SCID:A Parent’s Guide for the Newly Diagnosed by Susan branch

Susan branch — Sun, 22 Apr 2012 14:09:19 +0000

this is a awesome phamlet

Comment on A Sunny Day in the Sunshine State! Florida budget is signed making SCID screening the Law of the Land by Laura Anderson

Laura Anderson — Tue, 17 Apr 2012 20:29:00 +0000

Yeah

Comment on A Sunny Day in the Sunshine State! Florida budget is signed making SCID screening the Law of the Land by The Save Babies Through Newborn Screening Foundation

The Save Babies Through Newborn Screening Foundation — Tue, 17 Apr 2012 19:32:34 +0000

Great work Florida!!!

Comment on SCID Testing–A Possibility for Parents with Family History of PIDD by Susan branch

Susan branch — Tue, 17 Apr 2012 18:56:22 +0000

this could not hae happened without the help of Dr joel Weltman and Dr David Lee both of Brown University and also Dr Rebecca Buckley and of course the Newborn Screening committee here in Rhode Island

Comment on The need for Universal SCID Newborn Screening makes National News by Melissa Dunham

Melissa Dunham — Tue, 03 Apr 2012 09:27:10 +0000

I as mother of a child with CVID (common variable immune deficiency) would love to see this happen. Also, while we are at it, could we test Mitochondria and Dna for other types of isssues. Or, at least give the parents the option. My son expierenced horrible infections, and because he had other problems the frequent illnesses were pushed aside. His doctors are wonderful people and I am grateful for them, however, this test could have saved him so much pain. He his also autistic and cannot verbalize so many emotions, pain etc was one of them. Could have saved many hours in the emergency room etc, There is also preventive treatment that can be done for so many of these individuals. The treament is usuallly IVIG therapy. An infusion of immunoglobulin that is given to the child every 5-6 weeks depending on thier levels. Test this for families and children and adults.

Comment on Three more states start SCID newborn screening programs! by Three more states start SCID newborn screening programs! – IDF SCID Newborn Screening « Rare Metabolic Disorder Awareness (GA1)

Tue, 04 Oct 2011 16:10:05 +0000

[...] Three more states start SCID newborn screening programs! – IDF SCID Newborn Screening. Rate this: Share this:TwitterFacebookStumbleUponDiggRedditLinkedInEmailPrintLike this:LikeBe the first to like this post. [...]

Comment on A Father’s Story by Pat Penn

Pat Penn — Wed, 28 Sep 2011 02:26:03 +0000

Thank you for your statement. It gives us hope.
A grandma of a SCID angel

Comment on A father’s perspective: Editorial on Gov. Rick Scott’s veto of SCID screening by IDF_Emily

IDF_Emily — Thu, 25 Aug 2011 13:39:50 +0000

Thank you for notifying us, Gina. It seems that because of the age of the article the Tallahassee Democrat has archived the item. You can no longer access it wihout buying a subscription on the website. If anyone discovers another working link to the article, please post.

Thanks again!

Comment on A father’s perspective: Editorial on Gov. Rick Scott’s veto of SCID screening by Gina Antipov

Gina Antipov — Tue, 23 Aug 2011 15:16:45 +0000

“Page cannot be found.” Please “find” and fix. Thank you!