Month: September 2011

NEW!-What does an Abnormal Screen for SCID Mean? A Guide for Parents

By the end of 2011, roughly 10 states will have newborn screening for SCID with more to follow in the upcoming years.  With this in mind, IDF is pleased to announce the availability of a new educational handout for parents who receive an abnormal result from the TREC test.  We are hopeful that states will

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SCID Moms take their Stories to the Texas Legislature

On Tuesday, August 30, 2011 IDF volunteer Yvette Shorten and IDF Board of Trustees Member Carol Ann Demaret met with the Chair of the Texas House Public Health Committee, Representative Lois Kolkhorst, to discuss newborn screening for SCID in the state.  Rep. Kolkhorst was already well informed of the importance of SCID newborn screening, but

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About IDF SCID Newborn Screening
Severe Combined Immune Deficiency (SCID) is a primary immunodeficiency disease. Babies with SCID appear healthy at birth, but without early treatment, most often by bone marrow transplant from a healthy donor, these infants cannot survive. It is imperative therefore that newborn screening programs are established in all 50 states.

This blog is sponsored in part by Leadiant Biosciences and PerkinElmer.

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