Florida Governor Rick Scott signed the state budget into law at noon today, April 17, 2012. Included in that budget was language that will provide funding for the inclusion of testing for SCID within the Florida Newborn Screening Program, effectively making newborn screening for SCID the law of the land! Advocates and physicians have been working overtime over the past few months to ensure that Gov. Scott maintained this language in the final state budget.
Last year, the Florida Governor line item vetoed similar language, eliminating any chance for SCID screening to become a reality in the Sunshine State. Since that time, advocates like IDF volunteer and co-founder of SCID, Angels for Life Foundation Heather Smith
have redoubled their efforts to make sure that a similar fate did not await the provision this year. Heather and other parent advocates who have lived through the consequences of a world without newborn screening and the early intervention it allows have participated in meetings with public officials and encouraged media coverage to ensure their message of the importance of newborn screening for SCID was heard throughout the state.
Congratulations to everyone who participated in the calls to action and let their voices be heard about this critical issue! The budget takes effect July 1, 2012. Advocates are hopeful that implementation can start at that time.
Thank you to all of IDF’s phenomenal volunteers who are working to see SCID newborn screening in all 50 states! Please COMMENT below to tell us about the activities you are taking to make SCID newborn screening a reality in your own state! Comment or contact IDF through the CONTACT button at the top of the page to talk with someone about what is already happening in your state and how you can get involved. To learn more about the IDF SCID Newborn Screening Campaign and how you can get involved in your own state, check out the website! http://primaryimmune.org/patients-and-families/idf-scid-initiative/idf-scid-newborn-screening-campaign