Arkansas Senate Bill 423 was signed into law on March 18, 2013. The bill changed the language in the current newborn screening code to enable the Board of Health to add new conditions, like SCID, to the state’s screening panel. The bill passed with no issues thanks to the dedicated work of advocates in the state like Dr. Amy Scurlock, immunologist at the Arkansas Children’s Hospital and Associate Professor at University of Arkansas for Medical Sciences. Dr. Scurlock continues to work with the Board of Health to see SCID screening fully implemented in Arkansas. The act will go into effect 90 days after the legislature adjourns, after which time the Board of Health can approve the addition of SCID and begin setting up the state laboratory for screening.
To learn more about the IDF SCID Newborn Screening Campaign and how you can get involved in your state, check out the website: http://primaryimmune.org/patients-and-families/idf-scid-initiative/idf-scid-newborn-screening-campaign