The Newborn Screening Saves Lives Reauthorization Act (H.R. 1281) has passed the House, and it is anticipated will be considered by the Senate for final passage in the very near future! This Act will reengage important assistance programs that provide funding for improvements and expansion of current newborn screening programs.
HR 1281 was introduced in March 2013 following the sunset of the original Newborn Screening Saves Lives Act. The law established national newborn screening guidelines and helped create comprehensive newborn screening in every state. This law gave the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children the task of providin
HR 1281 reauthorizes the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children to continue the process of determining the RUSP, which now serves as the model for state newborn screening programs, allowing new conditions to be added.
The bill will also extend federal programs that provide assistance to states to improve and expand their newborn screening programs; support parent and provider education; and ensure laboratory quality and surveillance for newborn screening programs.
You can read the report on the House vote in the Congressional Record.