IDF 2017 National Conference Special Severe Combined Immune Deficiency (SCID) & SCID Variant Sympoisum

Thursday, June 15 & Friday, June 16

The Immune Deficiency Foundation (IDF) brings together the primary immunodeficiency community biennially for a three-day conference—the IDF National Conference, the world’s largest gathering of individuals and families living with primary immunodeficiency diseases (PI).

From physicians to nurses to specialized life management experts, individuals and families are presented with an unsurpassed opportunity to learn and connect.

Join us for the IDF 2017 National Conference in Anaheim, CA, our 9th national conference, June 15-17. This year, IDF will offer a Special Severe Combined Immune Deficiency (SCID) & SCID Variant Symposium for individuals and families living with SCID.

The symposium will include presentations from experts in the field regarding SCID. There will be extended sessions this year, allowing attendees more time together to learn from each other and ask questions. This is a perfect opportunity to get to know others and become a part of the SCID family. Even if you have attended an IDF SCID event in the past, there is always something new to learn by joining us!

Participants can attend general sessions Friday after the SCID symposium and all day on Saturday. Participants can also attend all other IDF 2017 National Conference events, such as the IDF Welcome to California Reception, IDF Zebra Gala and Silent Auction, and the Closing Session and IDF Family Night at Disneyland.

Topics

  • Getting to Know You: Networking Session
  • SCID National Update and Advocacy
  • Where We’ve Come from, Where We’re Going: SCID in the Era of Newborn Screening
  • What Is PIDTC, USIDNET and PI CONNECT
  • Next Generation & Quality of Life
  • SCID Family Journey: Discussion Panel
  • Current Known Genetic Forms of SCID
  • Stem Cell Transplantation for SCID
  • X-Linked Gene Therapy & the Future of Gene Therapy for SCID
  • ADA SCID
  • Managing Autoimmune Issues

Presenters:

Barbara Ballad
IDF Board of Trustees

Jack Bleesing, MD
Cincinnati Children’s Hospital

Rebecca Buckley, MD
Duke University School of Medicine

Mort Cowan, MD
University of California – San Francisco

Don Kohn, MD
University of California – Los Angeles

Harry Malech, MD
National Institute of Allergy and Infectious Disease – NIH

Ewelina Mamcarz, MD
St. Jude Children’s Research Hospital

Megan Murnane,
University of California – San Francisco

Sung-Yun Pai, MD
Dana Farber Boston Children’s Cancer and Blood Disorders Center

Jennifer Puck, MD
University of California – San Francisco

Heather Smith
Founder of SCID, Angels for Life

Brian Sorrentino, MD
St. Jude Children’s Research Hospital

Kathleen Sullivan, MD, PhD
The Children’s Hospital of Philadelphia

Amy Walsh
IDF Board of Trustees

Kenneth Weinberg, MD
Stanford Medicine 

Scholarships – There are scholarship opportunities for hotel accommodations, and limited travel available for individuals and families. To apply, you must be diagnosed or have an immediate family member diagnosed with SCID or SCID variant and attend the Special SCID & SCID Variant Symposium.

Scholarship application deadline is Monday, March 27.

Conference Registration – Easy, online registration is available at www.idfnationalconference.org. Early registration rates are available until Monday, May 1.

Childcare & IDF Youth Program – Childcare is available for attendees of this symposium during the symposium hours on Thursday. On Friday and Saturday, children can participate in the IDF Youth Program.

Click here to download the symposium flier.

Questions? Contact the IDF National Conference Office: conference@primaryimmune.org or 414-918-3022.

The Special SCID& SCID Variant Symposium is sponsored in part by the IDF SCID Initiative and Leadiant Biosciences.