December 10, 2014, the U.S. Congress passed the Newborn Screening Saves Lives Reauthorization Act (H.R. 1281). The bill now will now make its way to President Obama’s desk for his signature. Once signed into law, the Newborn Screening Saves Lives Reauthorization Act will renew federal initiatives that provide important assistance to state newborn screening programs, support parent and provider education and ensure the accuracy and quality of newborn screening tests for the next five years.
For the IDF community, this is an incredible step towards SCID screening implementation across the country. The Reauthorization Act provides the opportunity for states to receive assistance in improving and expanding their newborn screening programs. Currently, 25 states are screening for SCID – meaning half the country is either developing, gearing up, or has no current plan of SCID screening. The prospects of progress that H.R. 1281 brings to the safety of newborns is phenomenal.
IDF applauds the tireless work of our colleagues at The March of Dimes and for all those within our community who have been advocating on behalf of the smallest and most vulnerable among us.
For more information about H.R. 1281, read the full press release by the March of Dimes.