New York adds SCID to Newborn Screening Panel!

The New York Department of Health has created an emergency rule that will add SCID to the state’s Newborn Screening Panel! The DOH stated, “The Department of Health finds that immediate adoption of this rule is necessary to preserve the public health, safety and general welfare.” The Newborn Screening program has already developed and staffed a system of follow-up and access to treatment for identified infants. 

The New York Seal

The DOH has decided to make this an emergency rule so that it will be effective immediately in the state of New York in order to prevent infants from going undetected and having increased risk of serious systemic infections and early death.  The emergency rule is in effect until December 15, 2010; however, the Department intends to adopt the emergency rule as a permanent rule prior to the expiration.  The rule making notice explains the reasoning behind implementation of SCID screening and conducts an analysis of the costs associated with testing.  You can read the rule making notice at http://www.nyhealth.gov/regulations/emergency/docs/2010-09-17_newborn_screening_panel.pdf

 Please COMMENT below to tell us about the activities you are taking to make SCID newborn screening a reality in your own state!  Comment or contact IDF through the CONTACT button at the top of the page to talk with someone about what is already happening in your state and how you can get involved.