Ohio Screening Newborns for SCID

The Ohio Department of Health laboratory began screening all newborns for SCID on July 29, using the same newborn screening specimens already collected to test for 35 other rare disordersimages

“The new screening item helps move Ohio forward in our fight against infant mortality,” said Dr. Ted Wymyslo, Director of the Ohio Department of Health in a news release on August 2. “More than 1,000 babies die before their first birthday in Ohio. By detecting SCID early, we can help our state’s infants have a healthier start to life and less medical problems down the road.” You can read the full Ohio Department of Health news release for more information.

IDF volunteers Cynthia Kisik and Mark Leventhal worked to see SCID added to the state newborn screening panel by providing testimony at public hearings and advisory committees and holding meetings with policymakers in the state. Cynthia was diagnosed with SCID as a child and used her own experience as an example to determinedly work for screening in the state.

Thanks to these amazing advocates throughout the country, SCID newborn screening is now a reality in 16 states! To learn more about what you can do in your state, please visit the IDF SCID Newborn Screening Campaign page at http://primaryimmune.org/idf-advocacy-center/idf-scid-newborn-screening-campaign