On Tuesday, August 30, 2011 IDF volunteer Yvette Shorten and IDF Board of Trustees Member Carol Ann Demaret met with the Chair of the Texas House Public Health Committee, Representative Lois Kolkhorst, to discuss newborn screening for SCID in the state. Rep. Kolkhorst was already well informed of the importance of SCID newborn screening, but she listened to attentively to Carol Ann and Yvette as they shared their stories of personal experience with SCID. After their accounts, Rep. Kolkhorst voiced her complete support for the addition of SCID screening to the Texas newborn screening panel.
As Yvette remarked following the meeting, “We left feeling very positive that Newborn Screening for SCID will be fully implemented in Texas.” Building rapport and making a personal connection with the Chair of the Public Health Committee will hopefully help to secure the funding appropriation necessary to allow Texas to start screening for SCID across the entire state. Thank you to the wonderful advocacy efforts of these dedicated SCID moms!
If you are interested in advocating for SCID newborn screening or would like to share the activities you are involved in with your own state, please comment below or fill out the CONTACT form at the top of the screen. To learn more about the SCID Newborn Screening Campaign, check out the website! http://www.primaryimmune.org/advocacy_center/scid/scid_newborn_screening_initiative.asp