September-Newborn Screening Awareness Month!

Celebrate an important public health service this month – September is Newborn Screening Awareness Month! This is the perfect time to be motivated and start engaging with the SCID newborn screening campaign in your state. If you want to get involved but do not know where to start, an easy first step is to contact IDF. You can click the CONTACT button at the top of the blog or email idfscidinitiative@primaryimmune.org. IDF can help you find who to speak with in your state about the importance of newborn screening for SCID and work with you on the most effective ways to get your message across. More states are beginning to screen newborns for SCID every year as a result of the efforts of parents and advocates who decided to take the initiative and make their voices heard. Florida plans to begin screening all newborns in the state for SCID as soon as October 1, 2012! Meanwhile, many other states are not quite that far along.  Some might just need a push from a dedicated advocate (like you) to get started. 

To learn more about the IDF SCID Newborn Screening Campaign and how you can get involved in your own state, check out the website! http://primaryimmune.org/patients-and-families/idf-scid-initiative/idf-scid-newborn-screening-campaign