Tag: Currently Screening

Michigan Newborn Screening Finds Premature Baby with SCID

Samantha was born 9 weeks premature weighing only 3 pounds, 8 ounces. When newborn screening was done in her home state of Michigan, Samantha showed an abnormal result on the test for Severe Combined Immune Deficiency (SCID). This was not of itself conclusive, as premature babies can have abnormal results for the SCID test when

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Illinois Marks the 20th State to Implement SCID Newborn Screening

On June 16, 2014 the State of Illinois announced the start of newborn screening for SCID! Thank you to all of the advocates who have worked tirelessly to finally see this day. IDF Board Member Amy Walsh has advocated for the inclusion of SCID on the state’s newborn screening panel for years. Amy is the

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Experimental Technology Diagnoses Illness in Boy with ADA SCID

Fourteen-year-old Joshua Osborn, a member of the IDF community who was born with ADA SCID, was in a coma after weeks of fluid collecting on his brain for reasons unable to be identified. After physicians attempted all known methods for diagnostic results without success, an experimental new technology was employed with momentous results. Using a

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West Virginia, Latest State to Launch SCID Newborn Screening

West Virginia began screening for SCID on March 1, 2014! To read the official statement from the West Virginia Department of Health and Human Services, go to

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Washington State Screening for SCID

Effective January 1, 2014, newborns in Washington state are now being screened for Severe Combined Immune Deficiency! Washington is the 18th state to begin screening for SCID. You can read more about the new screening at on the Washington State Department of Health website. To learn more about what you can do in your state

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SCID Newborn Screening in California – A Family’s Story

Annalou was the first baby to be diagnosed with SCID as a result of newborn screening in California. She is now a healthy two-and-a-half-year-old little girl bringing joy to her family, thanks to early diagnosis and treatment. Watch Annalou’s family tell their story on the IDF Advocacy Channel.

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Ontario launches SCID Screening

Ontario began newborn screening for SCID on August 12, 2013, becoming the first province in Canada to implement this life-saving test. The ministry of health estimates up to 10 children a year will be saved in Ontario because of the new screening program. Read more about SCID screening in Canada at http://www.theglobeandmail.com/life/health-and-fitness/health/babies-to-be-tested-for-immune-disease/article13865475/

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Ohio Screening Newborns for SCID

The Ohio Department of Health laboratory began screening all newborns for SCID on July 29, using the same newborn screening specimens already collected to test for 35 other rare disorders “The new screening item helps move Ohio forward in our fight against infant mortality,” said Dr. Ted Wymyslo, Director of the Ohio Department of Health

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New states screening all newborns for SCID – Utah and Pennsylvania!

Beginning July 1, 2013 two new states will be added to the list of states currently screening for Severe Combined Immune Deficiency.  Pennsylvania’s Newborn Screening and Follow-up Technical Advisory Board recommended the addition of SCID to the mandated follow-up panel. With the approval of the Pennsylvania Department of Health, SCID will be added to the list of

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SCID Newborn Screening – Status of Implementation by State Map

With recent developments in the screening for SCID throughout the country, below is an updated map showing the status of implementation for the United States as of February 2013. Courtesy of the Newborn Screening Translational Research Network

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About IDF SCID Newborn Screening
Severe Combined Immune Deficiency (SCID) is a primary immunodeficiency disease. Babies with SCID appear healthy at birth, but without early treatment, most often by bone marrow transplant from a healthy donor, these infants cannot survive. It is imperative therefore that newborn screening programs are established in all 50 states.

This blog is sponsored in part by Leadiant Biosciences and PerkinElmer.

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