Tag: Delaware

SCID Newborn Screening – Status of Implementation by State Map

With recent developments in the screening for SCID throughout the country, below is an updated map showing the status of implementation for the United States as of February 2013. Courtesy of the Newborn Screening Translational Research Network

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SCID Newborn Screening Updates

There have been so many recent updates with the campaign to have universal SCID newborn screening, that it seemed helpful to make a comprehensive list of the current status of states where we know IDF volunteers are active on the SCID Newborn Screening Campaign in order to keep everyone up to date. States and Territories

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Delaware Fighting Spirit Pays Off!-Advisory Committee votes to Recommend SCID screening

On October 14, Delaware became the third state this month to have the state Advisory Committee vote to recommend the addition of SCID to the state’s newborn screening panel (along with Minnesota and Michigan).  IDF volunteers Donna Sawyer and Judy Kozulak were at the root of the resounding success in Delaware. Donna and Judy put

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Delaware ACTION!

The Blue Hen is the State Bird of Delaware, renowned for its fighting ability and the namesake of the University of Delaware’s Fightin’ Blue Hens. IDF Volunteers in the state are taking on this celebrated Delaware fighting spirit in the name of the Newborn Screening Campaign to have SCID added to the panel of conditions

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About IDF SCID Newborn Screening
Severe Combined Immune Deficiency (SCID) is a primary immunodeficiency disease. Babies with SCID appear healthy at birth, but without early treatment, most often by bone marrow transplant from a healthy donor, these infants cannot survive. It is imperative therefore that newborn screening programs are established in all 50 states.

This blog is sponsored in part by Leadiant Biosciences and PerkinElmer.

Advisory Committee Recommendation Arizona California Currently Screening Delaware Family Story FDA Florida General information IDF Immune Deficiency Foundation Legislation Michigan Minnesota New Hampshire New screening New York Pilot Program Research SCID SCID Variant Severe Combined Immune Deficiency South Dakota Special Symposium Virginia