Tag: Family Story

SCID Yesterday and Today – David Vetter’s Legacy 30 Years Later

Much has changed in the field of immunology since David Vetter, the young Texas boy affectionately known as the ‘boy in the bubble,’ was born in 1971. David had one of the most documented and studied cases of SCID in history, capturing the world’s attention for 12 years as he lived inside a protective plastic

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Baby born in Alaska proves the need for SCID Newborn Screening

Hayden Filley was born in Alaska a seemingly healthy baby boy.  It was not until months later, after Hayden became very sick and close to deaththat his family discovered he was born with Severe Combined Immune Deficiency.   Hayden was flown to Seattle Children’s Hospital where he was treated by Dr. Suzanne Skoda-Smith.  To learn

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About IDF SCID Newborn Screening
Severe Combined Immune Deficiency (SCID) is a primary immunodeficiency disease. Babies with SCID appear healthy at birth, but without early treatment, most often by bone marrow transplant from a healthy donor, these infants cannot survive. It is imperative therefore that newborn screening programs are established in all 50 states.

This blog is sponsored in part by Leadiant Biosciences and PerkinElmer.

Advisory Committee Recommendation Arizona California Currently Screening Delaware Family Story FDA Florida General information IDF Immune Deficiency Foundation Legislation Michigan Minnesota New Hampshire New screening New York Pilot Program Research SCID SCID Variant Severe Combined Immune Deficiency South Dakota Special Symposium Virginia