Tag: IDF

Arizona Takes Major Step to Offer Newborn Screening for Severe Combined Immune Deficiency

Immune Deficiency Foundation has led nationwide campaign to bring screening for deadly disease to all 50 states. The Immune Deficiency Foundation (IDF) commends Arizona Governor Doug Ducey for signing into law SB 1368 on Monday, May 22, 2017. This bill, sponsored by Senator Sylvia Allen, adds Severe Combined Immune Deficiency (SCID) to the state newborn

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IDF 2017 National Conference Special Severe Combined Immune Deficiency (SCID) & SCID Variant Sympoisum

Thursday, June 15 & Friday, June 16 The Immune Deficiency Foundation (IDF) brings together the primary immunodeficiency community biennially for a three-day conference—the IDF National Conference, the world’s largest gathering of individuals and families living with primary immunodeficiency diseases (PI). From physicians to nurses to specialized life management experts, individuals and families are presented with

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About IDF SCID Newborn Screening
Severe Combined Immune Deficiency (SCID) is a primary immunodeficiency disease. Babies with SCID appear healthy at birth, but without early treatment, most often by bone marrow transplant from a healthy donor, these infants cannot survive. It is imperative therefore that newborn screening programs are established in all 50 states.

This blog is sponsored in part by Leadiant Biosciences and PerkinElmer.

Advisory Committee Recommendation Arizona California Currently Screening Delaware Family Story FDA Florida General information IDF Immune Deficiency Foundation Legislation Michigan Minnesota New Hampshire New screening New York Pilot Program Research SCID SCID Variant Severe Combined Immune Deficiency South Dakota Special Symposium Virginia