Tag: New screening

Nebraska Makes Newborn Health a Top Priority

The state of Nebraska has established its commitment to children by adding mandatory newborn screening for SCID! The Nebraska Department of Health stated, “The test which has been implemented in about 20 other states has proven to be highly sensitive and specific. The program also has a recommended protocol for when positive screen results are

Continue Reading

Maine, Rhode Island, and Oregon Join the Ranks of States Implementing Newborn Screening for SCID

August has been a major month for newborn screening for SCID with Maine, Rhode Island and Oregon joining the 21 other states now screening. Early this month, the states of Maine and Rhode Island officially added mandatory newborn screening for SCID.  “Screening all of our newborns for SCID will help make sure we detect this

Continue Reading

New Jersey Announces SCID Newborn Screening

This week the state of New Jersey has added mandatory newborn screening for SCID!  “Adding this important screening test will save the lives of babies born each year with this serious immune-deficiency,” said Health Commissioner Mary E. O’Dowd. “The expansion of our comprehensive Newborn Screening Program will continue to improve the quality of life for

Continue Reading

Nebraska takes steps to add SCID to newborn screening panel

The Nebraska Department of Health and Human Services has proposed a regulation change that will allow the state to start newborn screening for SCID starting July 1, 2014. They will hold a hearing to accept comments on the proposed change on Thursday, March 20, 2014. Written comments can also be submitted online. To find out

Continue Reading

South Carolina to add SCID to their Newborn Screening Panel

On Thursday, South Carolina’s Department of Health and Environmental Control announced they will soon be screening all newborns for Severe Combined Immune Deficiency! South Carolina plans to have the staff and equipment in place to begin screening by Summer 2014. To read the AP story on the announcement, go to http://www.thestate.com/2014/01/23/3223170/apnewsbreak-dhec-adding-newborn.html. To find out how you can

Continue Reading

Washington State Screening for SCID

Effective January 1, 2014, newborns in Washington state are now being screened for Severe Combined Immune Deficiency! Washington is the 18th state to begin screening for SCID. You can read more about the new screening at on the Washington State Department of Health website. To learn more about what you can do in your state

Continue Reading

Oklahoma Board of Health Approves SCID Screening

At the December 10, 2013 meeting of the Oklahoma Board of Health, the Board unanimously approved the proposed rule amendment to add SCID to the state’s newborn screening panel. You can read the proposed rule change as it was approved at http://www.ok.gov/health2/documents/310-550%20Packet.pdf . The state will now begin the process of implementation with validation of

Continue Reading

Washington State to Screen all Newborns for SCID

  Following a lot of hard work from the Washington State Department of Health and advocates throughout the state, the State Board of Health unanimously approved the proposal to add SCID to Washington’s newborn screening panel at their meeting on October 9,2013! The Department of Health is committed to implement testing in January 2014. To read

Continue Reading

Washington State Expected to Add SCID to Its Newborn Screening Panel

The Washington State Board of Health is proposing a rule that would amend the Washington Administrative Code (WAC) to add screening for Severe Combined Immune Deficiency (SCID) to the state’s newborn screening panel. If adopted, the screening would be conducted with an increase of $8.10 in the newborn screening fee per baby. After reviewing the evidence and

Continue Reading

CDC Funds Georgia, Oklahoma, and Virginia to Screen for SCID

The Centers for Disease Control and Prevention’s (CDC) National Center for Environmental Health, Newborn Screening and Molecular Biology Branch recently announced that three states–Georgia, Oklahoma, and Virginia—will be funded for a total of $1,800,000 under the “Program to Support New Implementation of State or Territorial Public Health Laboratory Capacity for Newborn Bloodspot Screening of Severe

Continue Reading

About IDF SCID Newborn Screening
Severe Combined Immune Deficiency (SCID) is a primary immunodeficiency disease. Babies with SCID appear healthy at birth, but without early treatment, most often by bone marrow transplant from a healthy donor, these infants cannot survive. It is imperative therefore that newborn screening programs are established in all 50 states.

This blog is sponsored in part by Leadiant Biosciences and PerkinElmer.

Advisory Committee Recommendation Arizona California Currently Screening Delaware Family Story FDA Florida General information IDF Immune Deficiency Foundation Legislation Michigan Minnesota New Hampshire New screening New York Pilot Program Research SCID SCID Variant Severe Combined Immune Deficiency South Dakota Special Symposium Virginia

Categories

Archive