Tag: New York

SCID Newborn Screening – Status of Implementation by State Map

With recent developments in the screening for SCID throughout the country, below is an updated map showing the status of implementation for the United States as of February 2013. Courtesy of the Newborn Screening Translational Research Network

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SCID Newborn Screening Updates

There have been so many recent updates with the campaign to have universal SCID newborn screening, that it seemed helpful to make a comprehensive list of the current status of states where we know IDF volunteers are active on the SCID Newborn Screening Campaign in order to keep everyone up to date. States and Territories

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New York adds SCID to Newborn Screening Panel!

The New York Department of Health has created an emergency rule that will add SCID to the state’s Newborn Screening Panel! The DOH stated, “The Department of Health finds that immediate adoption of this rule is necessary to preserve the public health, safety and general welfare.” The Newborn Screening program has already developed and staffed

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Take Action NEW YORK State!

  New York is known as a place of movement and action (from the bustle of activity in NYC to the IDF Retreat in Rye Brook in June :)) and now New York is currently a site of action on the SCID Newborn Screening Campaign! New York State’s Health Department is making some administrative moves

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About IDF SCID Newborn Screening
Severe Combined Immune Deficiency (SCID) is a primary immunodeficiency disease. Babies with SCID appear healthy at birth, but without early treatment, most often by bone marrow transplant from a healthy donor, these infants cannot survive. It is imperative therefore that newborn screening programs are established in all 50 states.

This blog is sponsored in part by Leadiant Biosciences and PerkinElmer.

Advisory Committee Recommendation Arizona California Currently Screening Delaware Family Story FDA Florida General information IDF Immune Deficiency Foundation Legislation Michigan Minnesota New Hampshire New screening New York Pilot Program Research SCID SCID Variant Severe Combined Immune Deficiency South Dakota Special Symposium Virginia

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