Tag: Research

New Study Confirms the Urgent Need for SCID Newborn Screening

Journal of American Medical Association (JAMA) published a study this week that supports IDF’s campaign to see universal newborn screening for SCID across the U.S. The retrospective study of more than 3 million infants from 11 newborn screening programs found that 92% of infants with SCID who received early intervention, such as bone marrow transplants,

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National News: Study Findings Support IDF SCID Newborn Screening Campaign

Today, The New England Journal of Medicine. published results of stem cell transplants in infants with Severe Combined Immune Deficiency (SCID), noting the excellent survival among those diagnosed and treated early. This article resulted in national media coverage in The Wall Street Journal, CBS News, USA Today and several other sources that highlight the efficacy

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About IDF SCID Newborn Screening
Severe Combined Immune Deficiency (SCID) is a primary immunodeficiency disease. Babies with SCID appear healthy at birth, but without early treatment, most often by bone marrow transplant from a healthy donor, these infants cannot survive. It is imperative therefore that newborn screening programs are established in all 50 states.

This blog is sponsored in part by Leadiant Biosciences and PerkinElmer.

Advisory Committee Recommendation Arizona California Currently Screening Delaware Family Story FDA Florida General information IDF Immune Deficiency Foundation Legislation Michigan Minnesota New Hampshire New screening New York Pilot Program Research SCID SCID Variant Severe Combined Immune Deficiency South Dakota Special Symposium Virginia

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