Tag: Virginia

SCID Newborn Screening Updates

There have been so many recent updates with the campaign to have universal SCID newborn screening, that it seemed helpful to make a comprehensive list of the current status of states where we know IDF volunteers are active on the SCID Newborn Screening Campaign in order to keep everyone up to date. States and Territories

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Live Rotavirus Vaccine should NOT be given to SCID infants!

It would be amazing if IDF could mobilize efforts and nullify all administrative issues so that newborn screening for SCID could become universal throughout the United States overnight. Unfortunately, this is not the reality of the situation and despite IDF’s efforts and the efforts of IDF’s dedicated volunteers, many states are years away from implementation

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Take Action in Virginia

My son Ray was born with XSCID, but since there was no family history of the disease, he was not diagnosed until he was so sick with pneumonia that he was on a ventilator. He has permanent organ damage because of infections he was unable to fight off on his own. He is also hearing

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Welcome to the NEW IDF SCID Newborn Screening Campaign blog!

Welcome to the NEW IDF Severe Combined Immune Deficiency (SCID) Newborn Screening Campaign blog! It is amazing how many people are already aware of and working with the IDF campaign to have SCID (commonly known as bubble boy disease) added to the newborn screening panel in all 50 states. We are particularly grateful for the

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About IDF SCID Newborn Screening
Severe Combined Immune Deficiency (SCID) is a primary immunodeficiency disease. Babies with SCID appear healthy at birth, but without early treatment, most often by bone marrow transplant from a healthy donor, these infants cannot survive. It is imperative therefore that newborn screening programs are established in all 50 states.

This blog is sponsored in part by Leadiant Biosciences and PerkinElmer.

Advisory Committee Recommendation Arizona California Currently Screening Delaware Family Story FDA Florida General information IDF Immune Deficiency Foundation Legislation Michigan Minnesota New Hampshire New screening New York Pilot Program Research SCID SCID Variant Severe Combined Immune Deficiency South Dakota Special Symposium Virginia