Taylor Dahley has SCID. He’s had a bone marrow transplant and is living a healthy, productive life but the story isn’t as positive for his older brother, Brandon. Brandon was also born with SCID but unfortunately he wasn’t diagnosed until he was in the hospital and gravely illl. Brandon died at 7 months old.
Brandon and Taylor’s family are fighting to add SCID to the newborn screening panel in the state of Florida so no other baby has to die in Florida from this devastating and treatable disease. SCID has been approved by the Secretary of Health, Kathleen Sebelius, but now it’s up to the Florida Newborn Screening Advisory Panel and the Department of Health to actually add and implement the screening. To read more about Brandon and Taylor’s story go to www.SCIDangelsforlife.com
Please help this family with their fight. They can’t do it alone. TAKE ACTION now by contacting your Senator and Congressman in Florida and throughout the United States and let them know the importance of identifying these babies at birth, before they become ill. Senators’ Contact Information and Governors’ Contact Information
The time to save a life is NOW, please help!