Texas mom and SCID newborn screening advocate Jennifer Garcia does not stay still for long. Jennifer has been all over the state of Texas this year convincing hospitals to join in the state’s pilot SCID newborn screening program. In her spare time, she has also been meeting with policymakers from state legislatures to Department of State Health Services (DSHS) officials advocating for statewide implementation of SCID screening.
This holiday season, Jennifer met with Congressman Bill Flores on December 21, 2011. Jennifer scheduled 20 minutes to speak with the Congressman, but ended up staying and talking with Representative Flores for over an hour! As a result of the meeting, Rep. Flores promised to write Dr. David Lakey, Commissioner of DSHS, and ask him to implement SCID newborn screening as soon as possible.
On January 4, 2012 Jennifer was asked to speak to the DSHS staff and lab faculty about SCID and newborn screening. As an added bonus, she was able to meet with Commissioner Lakey and speak with him about the issues. As Jennifer describes her experience following their conversation, “The meeting today with Commissioner Lakey was very, very positive. As a mom on a mission I left happy today after our meeting. I feel Texas will have good news soon.”
Thank you to Jennifer and all of the mothers and advocates throughout the country who tirelessly work toward universal SCID newborn screening.
Please COMMENT below to tell us about the activities you are taking to make SCID newborn screening a reality in your own state! Comment or contact IDF through the CONTACT button at the top of the page to talk with someone about what is already happening in your state and how you can get involved. To learn more about the SCID Newborn Screening Campaign, check out the website! http://primaryimmune.org/patients-and-families/idf-scid-initiative/idf-scid-newborn-screening-campaign