On April 19, the District of Columbia’s Mayor’s Advisory Committee on Metabolic Disorders voted to recommend the addition of SCID to the district’s newborn screening panel. The recommendation and approval is now in the hands of the Director of the Health Department and the Healthcare Finance Committee before receiving final approval to begin screening by the Mayor of Washington, DC. The Advisory Committee found in their research that adding SCID to the newborn screening panel would cost only an additional $5 per test. What an insignificant cost when compared to the lives that will be saved!
Then more exciting news – on April 26, the New Jersey Newborn Screening Annual Review Committee also voted to recommend the addition of SCID to their state newborn screening panel! The recommendation will be reviewed by the Commissioner of Health and may need legislative approval for an increase in the fee charged for newborn screening. IDF volunteers in the state shared their stories with the Newborn Screening Program to emphasize the importance of early detection and describe the experience of losing a child to this detectable and treatable disease. Thank you to Donna Fitzgerald, Dale Budd, and Tara Mingione for their dedication to seeing SCID screening come to New Jersey.
This is wonderful progress as Washington, DC and New Jersey find themselves added to the list of states that are proactively moving toward implementation of SCID newborn screening.
Please COMMENT below to tell us about the activities you are taking to make SCID newborn screening a reality in your own state! Comment or contact IDF through the CONTACT button at the top of the page to talk with someone about what is already happening in your state and how you can get involved. To learn more about the SCID Newborn Screening Campaign, check out the website!http://www.primaryimmune.org/advocacy_center/scid/scid_newborn_screening_initiative.asp