The Washington State Board of Health is proposing a rule that would amend the Washington Administrative Code (WAC) to add screening for Severe Combined Immune Deficiency (SCID) to the state’s newborn screening panel. If adopted, the screening would be conducted with an increase of $8.10 in the newborn screening fee per baby. After reviewing the evidence and issues, an ad hoc Newborn Screening Advisory Committee judged that SCID meets the Board of Health’s criteria for inclusion on the screening panel for which all infants born in our state must be screened. The Board will hold a public hearing on the proposal to add these conditions at their meeting on October 9, 2013.
Mike Glass, Director of Newborn Screening at the Department of Health anticipates that the proposal will be approved without issue at the meeting. The state estimates screening for SCID will lead to the discovery of around two babies each year with the disorder and six or seven babies with other primary immunodeficiency diseases.
If the Board of Health approves the screening, Glass said infants will be tested for SCID as soon as January 1, 2014.
To read more about the proposed screening, please see http://www.komonews.com/news/health/Testing-newborns-for-boy-in-the-bubble-disease-could-save-taxpayers-money-226947401.html?mobile=y
To learn more about what you can do in your state, please visit the IDF SCID Newborn Screening Campaign page at http://primaryimmune.org/idf-advocacy-center/idf-scid-newborn-screening-campaign