New Study Confirms the Urgent Need for SCID Newborn Screening

Journal of American Medical Association (JAMA) published a study this week that supports IDF’s campaign to see universal newborn screening for SCID across the U.S. The retrospective study of more than 3 million infants from 11 newborn screening programs found that 92% of infants with SCID who received early intervention, such as bone marrow transplants,

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Maine, Rhode Island, and Oregon Join the Ranks of States Implementing Newborn Screening for SCID

August has been a major month for newborn screening for SCID with Maine, Rhode Island and Oregon joining the 21 other states now screening. Early this month, the states of Maine and Rhode Island officially added mandatory newborn screening for SCID.  “Screening all of our newborns for SCID will help make sure we detect this

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National News: Study Findings Support IDF SCID Newborn Screening Campaign

Today, The New England Journal of Medicine. published results of stem cell transplants in infants with Severe Combined Immune Deficiency (SCID), noting the excellent survival among those diagnosed and treated early. This article resulted in national media coverage in The Wall Street Journal, CBS News, USA Today and several other sources that highlight the efficacy

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New Jersey Announces SCID Newborn Screening

This week the state of New Jersey has added mandatory newborn screening for SCID!  “Adding this important screening test will save the lives of babies born each year with this serious immune-deficiency,” said Health Commissioner Mary E. O’Dowd. “The expansion of our comprehensive Newborn Screening Program will continue to improve the quality of life for

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Newborn Screening Saves Lives Reauthorization Act Passes in the House

The Newborn Screening Saves Lives Reauthorization Act (H.R. 1281) has passed the House, and it is anticipated will be considered by the Senate for final passage in the very near future!  This Act will reengage important assistance programs that provide funding for improvements and expansion of current newborn screening programs. HR 1281 was introduced in

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SCID Yesterday and Today – David Vetter’s Legacy 30 Years Later

Much has changed in the field of immunology since David Vetter, the young Texas boy affectionately known as the ‘boy in the bubble,’ was born in 1971. David had one of the most documented and studied cases of SCID in history, capturing the world’s attention for 12 years as he lived inside a protective plastic

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Illinois Marks the 20th State to Implement SCID Newborn Screening

On June 16, 2014 the State of Illinois announced the start of newborn screening for SCID! Thank you to all of the advocates who have worked tirelessly to finally see this day. IDF Board Member Amy Walsh has advocated for the inclusion of SCID on the state’s newborn screening panel for years. Amy is the

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Experimental Technology Diagnoses Illness in Boy with ADA SCID

Fourteen-year-old Joshua Osborn, a member of the IDF community who was born with ADA SCID, was in a coma after weeks of fluid collecting on his brain for reasons unable to be identified. After physicians attempted all known methods for diagnostic results without success, an experimental new technology was employed with momentous results. Using a

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Webcast Discusses Health Economics Analysis of SCID Newborn Screening in France

PerkinElmer features a webcast with Dr. Isabelle Durand-Zaleski of the Paris Health Economics and Health Services Research Unit discussing the cost effectiveness of implementing systematic screening for Severe Combined Immune Deficiency (SCID). It explains the costs of screening all newborns and the cost potentially avoided by an early treatment (e.g. bone marrow transplant). Click here

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West Virginia, Latest State to Launch SCID Newborn Screening

West Virginia began screening for SCID on March 1, 2014! To read the official statement from the West Virginia Department of Health and Human Services, go to

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About IDF SCID Newborn Screening
Severe Combined Immunodeficiency (SCID) is a primary immunodeficiency disease. Babies with SCID appear healthy at birth, but without early treatment, most often by bone marrow transplant from a healthy donor, these infants cannot survive. It is imperative therefore that newborn screening programs are established in all 50 states.

This blog is sponsored in part by PerkinElmer and Sigma-Tau Pharmaceuticals, Inc.

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