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Major Win for Newborn Screening!

December 10, 2014, the U.S. Congress passed the Newborn Screening Saves Lives Reauthorization Act (H.R. 1281). The bill now will now make its way to President Obama’s desk for his signature. Once signed into law, the Newborn Screening Saves Lives Reauthorization Act will renew federal initiatives that provide important assistance to state newborn screening programs,

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Nebraska Makes Newborn Health a Top Priority

The state of Nebraska has established its commitment to children by adding mandatory newborn screening for SCID! The Nebraska Department of Health stated, “The test which has been implemented in about 20 other states has proven to be highly sensitive and specific. The program also has a recommended protocol for when positive screen results are

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Action Needed in States Not Screening for SCID

Recent opinion pieces published in Montana and North Carolina expressed hope that both states protect their vulnerable citizens and add SCID newborn screening to their state newborn screening panels. Marcia Boyle, IDF President & Founder, authored an opinion piece for the Missoulian emphasizing the true cost of failing to screen for this potentially-fatal condition. Dr.

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Michigan Newborn Screening Finds Premature Baby with SCID

Samantha was born 9 weeks premature weighing only 3 pounds, 8 ounces. When newborn screening was done in her home state of Michigan, Samantha showed an abnormal result on the test for Severe Combined Immune Deficiency (SCID). This was not of itself conclusive, as premature babies can have abnormal results for the SCID test when

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New Study Confirms the Urgent Need for SCID Newborn Screening

Journal of American Medical Association (JAMA) published a study this week that supports IDF’s campaign to see universal newborn screening for SCID across the U.S. The retrospective study of more than 3 million infants from 11 newborn screening programs found that 92% of infants with SCID who received early intervention, such as bone marrow transplants,

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Maine, Rhode Island, and Oregon Join the Ranks of States Implementing Newborn Screening for SCID

August has been a major month for newborn screening for SCID with Maine, Rhode Island and Oregon joining the 21 other states now screening. Early this month, the states of Maine and Rhode Island officially added mandatory newborn screening for SCID.  “Screening all of our newborns for SCID will help make sure we detect this

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National News: Study Findings Support IDF SCID Newborn Screening Campaign

Today, The New England Journal of Medicine. published results of stem cell transplants in infants with Severe Combined Immune Deficiency (SCID), noting the excellent survival among those diagnosed and treated early. This article resulted in national media coverage in The Wall Street Journal, CBS News, USA Today and several other sources that highlight the efficacy

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New Jersey Announces SCID Newborn Screening

This week the state of New Jersey has added mandatory newborn screening for SCID!  “Adding this important screening test will save the lives of babies born each year with this serious immune-deficiency,” said Health Commissioner Mary E. O’Dowd. “The expansion of our comprehensive Newborn Screening Program will continue to improve the quality of life for

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Newborn Screening Saves Lives Reauthorization Act Passes in the House

The Newborn Screening Saves Lives Reauthorization Act (H.R. 1281) has passed the House, and it is anticipated will be considered by the Senate for final passage in the very near future!  This Act will reengage important assistance programs that provide funding for improvements and expansion of current newborn screening programs. HR 1281 was introduced in

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SCID Yesterday and Today – David Vetter’s Legacy 30 Years Later

Much has changed in the field of immunology since David Vetter, the young Texas boy affectionately known as the ‘boy in the bubble,’ was born in 1971. David had one of the most documented and studied cases of SCID in history, capturing the world’s attention for 12 years as he lived inside a protective plastic

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About IDF SCID Newborn Screening
Severe Combined Immunodeficiency (SCID) is a primary immunodeficiency disease. Babies with SCID appear healthy at birth, but without early treatment, most often by bone marrow transplant from a healthy donor, these infants cannot survive. It is imperative therefore that newborn screening programs are established in all 50 states.

This blog is sponsored in part by PerkinElmer and Sigma-Tau Pharmaceuticals, Inc.

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