Category: Delaware

New Online Learning Resource for SCID Screening: Just in Time for Newborn Screening Month

Today, newborns in most states, the District of Columbia and Puerto Rico are screened for at least 29 conditions within the first few days after birth. Using a few drops of blood, newborn screening detects a treatable condition in about 1 in 300 babies born each year. The Newborn Screening Education project,, a joint venture between

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SCID Newborn Screening – Status of Implementation by State Map

With recent developments in the screening for SCID throughout the country, below is an updated map showing the status of implementation for the United States as of February 2013. Courtesy of the Newborn Screening Translational Research Network

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Statewide Screening for SCID becomes a reality in Delaware

Delaware has officially launched a pilot program to begin screening for SCID!  In recognition of the statewide screening, IDF volunteer and SCID mother Donna Sawyer visited the Delaware State Lab with her family on December 29, 2011 to see the new equipment and meet the staff running the SCID tests. Last year, Donna presented at

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Current Status of SCID Newborn Screening Implementation

Below is a map that IDF showed at the IDF 2011 National Conference showing the status of implementation for SCID screening across the country.  This status is in a constant state of flux as more states vote to add SCID to their state newborn screening panels and others that voted to recommend last year actually

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Where are they now?

State Newborn Screening Advisory Committees that recommended SCID in 2010 – How are they progressing toward implementation? Colorado After a condition is recommended for addition to the Newborn Screening Panel by Colorado’s newborn screening advisory committee, the addition must be go before  the state Legislature to approve an increase in the fee charged for newborn

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New Year, New Updates on SCID Screening

The status of newborn screening for SCID throughout the country is constantly changing as more and more states realize the importance and value of implementing this test. States are making definitive strides toward implementation with the knowledge that screening for SCID will literally save children’s lives. Below is an updated list of states that are currently

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SCID Newborn Screening Updates

There have been so many recent updates with the campaign to have universal SCID newborn screening, that it seemed helpful to make a comprehensive list of the current status of states where we know IDF volunteers are active on the SCID Newborn Screening Campaign in order to keep everyone up to date. States and Territories

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Delaware Fighting Spirit Pays Off!-Advisory Committee votes to Recommend SCID screening

On October 14, Delaware became the third state this month to have the state Advisory Committee vote to recommend the addition of SCID to the state’s newborn screening panel (along with Minnesota and Michigan).  IDF volunteers Donna Sawyer and Judy Kozulak were at the root of the resounding success in Delaware. Donna and Judy put

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Delaware ACTION!

The Blue Hen is the State Bird of Delaware, renowned for its fighting ability and the namesake of the University of Delaware’s Fightin’ Blue Hens. IDF Volunteers in the state are taking on this celebrated Delaware fighting spirit in the name of the Newborn Screening Campaign to have SCID added to the panel of conditions

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About IDF SCID Newborn Screening
Severe Combined Immune Deficiency (SCID) is a primary immunodeficiency disease. Babies with SCID appear healthy at birth, but without early treatment, most often by bone marrow transplant from a healthy donor, these infants cannot survive. It is imperative therefore that newborn screening programs are established in all 50 states.

This blog is sponsored in part by Leadiant Biosciences and PerkinElmer.

Advisory Committee Recommendation Arizona California Currently Screening Delaware Family Story FDA Florida General information IDF Immune Deficiency Foundation Legislation Michigan Minnesota New Hampshire New screening New York Pilot Program Research SCID SCID Variant Severe Combined Immune Deficiency South Dakota Special Symposium Virginia